ospitalized patients with
cardiovascular disease have many educational
needs--reaching beyond wound care to education on risk
factors. However, in today's health care environment,
medical and nursing staff rarely have time to offer an
individualized approach or to do more than distribute
brochures and provide a short nursing consultation. In
addition, patients typically are not physically or
psychologically ready to receive vital education
regarding risk factors for their disease while in the
hospital. Although more extensive inpatient
(phase 1) cardiac rehabilitation programs have been
offered that consist of an exercise protocol, risk factor
assessment, activity counseling, and patient and family
education, many hospitals are discontinuing such
programs. Outpatient cardiac rehabilitation programs
(phase II) are more extensive, meeting 3 days a week for
12 weeks. However, only an estimated 10% of patients with
cardiovascular events participate in phase II programs,
despite evidence that participation results in reduced
readmission rates, increased patient functionality,
improved quality of life, and decreased mortality (1).
One likely reason for low referrals to cardiac
rehabilitation is limited insurance coverage for
particular cardiovascular diagnoses.
To fill this educational
gap, in 1994 Baylor Health Care System (BHCS) developed
the Leap for Life program for patients who either are
unable to attend or have limited access to a cardiac
rehabilitation facility. In 1998, Leap for Life was made
the primary educational component of phase II cardiac
rehabilitation programs in the Baylor Health Care System
in addition to being offered separately.
By enrolling in Leap for
Life, a patient with cardiovascular disease receives 6
hours of education and 3 follow-up telephone calls over a
12-month period to assess progress toward meeting
personal lifestyle modification goals set at the
workshop. In addition, participants receive a
user-friendly 42-page workbook that reviews
cardiovascular disease, cardiovascular medications,
exercise and physical activity, nutrition, and stress
management. Participants are encouraged to bring a guest
so that family members may be involved in risk factor
modification. The workshops, taught by an
interdisciplinary team of professionals that includes
nurses, pharmacists, exercise specialists, dietitians,
social workers, chaplains, and physicians, are offered at
different times and locations in several North Texas
communities to meet the needs of patients soon after they
have experienced a cardiovascular event.
In a Leap for Life
workshop, the educators attempt to empower patients to
identify, plan, and implement cardiovascular risk factor
lifestyle modifications by creating a learning
environment that promotes self-discovery. In combination
with this self-discovery process, necessary clinical and
behavioral guidelines are addressed. A typical Leap for
Life workshop is not conducted in an ordinary lecture
format. Instead, educators lead participants through
discussions by motivating them to ask questions. As
discussed in Engines for Education, Schools
cannot simply tell the answers, they have to motivate the
questions first. Schools that fail to do this will simply
not work (2).
The Leap for Life team
utilizes 2 concepts, adherence and alliance, within its
educational model. Ideally, patients who identify
personal goals will better adhere to risk factor
modification procedures. It is also important for
educators and participants to form an alliance in which
they consider themselves active partners. Participants
are responsible for creating individualized, specific,
measurable, attainable, realistic, and timed goals that
are prospectively tracked by Leap for Life personnel at
baseline and at 3, 6, and 12 months after. Rather than
simply asking participants to memorize clinical
information, progress and outcomes are assessed.
The Leap for Life
workshops have not required an extensive investment by
the Baylor Health Care System. Currently employed staff
members teach educational sessions, sometimes adjusting
work schedules to participate in weekend workshops. Many
community members, organizations, and former Leap for
Life participants have made cash donations for
operational expenses and program funding. Furthermore,
pharmaceutical representatives have often provided lunch
for workshop participants.
The year 1997 marked the
first time that the Leap for Life program followed up on
participants' goals and satisfaction with the program;
prior to that date, follow-up focused on participants'
knowledge retention. After the first full year of such
tracking, the measures were evaluated, as described
below.
METHODS
Between January 1 and
December 31, 1997, 161 persons attended a Leap for Life
workshop. Of these, 152 (94%) gave written consent to
participate in the telephone follow-up process. The
workshops were conducted at 4 Baylor Health Care System
hospitals and one senior center, all located in the
Dallas, Texas, area.
Participant diagnoses and
cardiovascular disease risk factors were assessed before
workshop participation. After the workshop, patients set
nutrition and exercise goals for the future and filled
out a satisfaction questionnaire. Participants were
resurveyed by telephone at 3, 6, and 12 months after the
workshop to assess goal achievement, hospital
readmission, patient satisfaction, and educational model
preference. The response rate at 3 months was 72% (109 of
152); at 6 months, 73% (111 of 152); and at 12 months,
80% (121 of 152). Reasons for nonresponse included wrong
phone numbers, participant illness, hospital stay, or
reaching the maximum number of telephone attempts without
contact.
RESULTS
Leap for Life
participants were primarily male (59%), with an average
age of 66 years. Each participant reported having at
least one of the following: coronary artery disease
(18%), interventional procedures (18%) (e.g.,
percutaneous transluminal coronary angioplasty, stent,
cardiac catheterization), angina (17%), myocardial
infarction (13%), coronary artery bypass graft (10%), and
risk factors for coronary artery disease (i.e., tobacco
use, sedentary lifestyle, excessive body weight,
hypercholesterolemia, hypertension, diabetes, age, male
gender, family history), congestive heart failure, and
electrical abnormalities (6% each).
The participants had an
average of 4 cardiovascular disease risk factors. Risk
factors were determined using the guidelines of the
American Heart Association and the National Heart, Lung,
and Blood Institute (3, 4). Hypercholesterolemia (59%)
was the controllable risk factor most frequently
reported, followed by hypertension (58%) and excessive
body weight (48%); age or gender (85%) was the most
common uncontrollable risk factor reported (Figure
1).
Of the 152 participants
who took part in the telephone follow-up program, 19%
reported a hospital admission with a cardiovascular
diagnosis at some point during the 12-month follow-up
period (Figure 2). Overall, 21% of
participants met all of their goals, 56% met some of
their goals, and 23% met none of their goals (Table).
Of those participants who completed a workshop
satisfaction questionnaire, 100% reported (on a
dichotomous yes or no instrument) that the educational
sessions met their needs. The majority (75%) preferred to
learn about cardiovascular disease risk factors in a Leap
for Life setting, while 5% would have rather acquired the
information in the hospital setting. The remaining 20% of
participants preferred alternative learning environments
such as home study or physician interaction.
| Table. Twelve-month
goals for Leap for Life participants |
| Goal* |
No. of goals |
Goal met |
Goal not met |
| Tobacco |
10 |
8 (80%) |
2 (20%) |
| Cholesterol |
44 |
23 (52%) |
21 (48%) |
| Exercise |
76 |
36 (47%) |
40 (53%) |
| Body weight |
58 |
9 (16%) |
49 (84%) |
| Blood pressure |
17 |
10 (59%) |
7 (41%) |
| Diabetes mellitus |
8 |
5 (63%) |
3 (37%) |
| Stress |
31 |
11 (35%) |
20 (65%) |
| *Each
participant set his or her own goals. Goals
related to high blood pressure, for example,
could have ranged from taking the prescribed
blood pressure medicine as directed to checking
blood pressure weekly at a drug store. Regarding
tobacco, many participants decided to quit
smoking. However, other participants may have set
a goal of cutting down on tobacco products or
even of participating in another tobacco
cessation program. For these reasons, it is
difficult to compare these results with those of
other published studies. |
DISCUSSION
The goal of this internal
evaluation of the Leap for Life program was to determine
if patients were satisfied with the program and if they
were motivated by the program to work toward their goals.
Based on these measures, the Leap for Life program
achieved some degree of success, since 77% of
participants reported meeting at least some of their
goals and all reported that the program met their
educational needs. Further, the methodology of Leap for
Life has been backed up by published studies. For
example, research in the context of smoking cessation
programs indicates that the number of months subjects are
in contact with the programs is the strongest predictor
of success (5) and that even brief telephone
contacts have been found to be effective aids and
to improve overall results (6). It has been widely
reported that those who exercise regularly and
successfully decrease cardiovascular risk factors have
decreased mortality (7, 8). Both exercise and decreased
risk factors are common goals set by participants in the
Leap for Life program.
Since the evaluation was
not designed as a research study and has no control
group, general conclusions about its effectiveness must
be limited. It is difficult to compare Leap for Life data
with published data from other educational programs since
model design and goal evaluation processes almost always
differ. Nevertheless, comparison with a similar research
project allows some degree of analysis. There are
similarities in follow-up design between Leap for Life
and the Cardiovascular Outcomes Measurement Program
(COMP) research project. This study is currently under
way in the Baylor University Medical Center cardiac
rehabilitation department. In this study, patients who
attend cardiac rehabilitation (versus controls who do
not) are evaluated for risk factor assessment 5 times
during the 12 months following a cardiovascular event. A
typical control patient from the COMP study receives no
cardiovascular education or rehabilitation other than
that provided during the hospital stay.
The COMP follow-up model
is very similar to that for Leap for Life. Interestingly,
the rehospitalization rate of 19% for the Leap for Life
group is low compared with the 41% rehospitalization rate
for control patients in COMP. Other preliminary 1-year
follow-up results from the COMP control patient database
indicate that 50% of participants showed an increase in
total cholesterol, 46% had higher systolic blood
pressure, and 60% had an increase in body weight. As
reported in the Table, 52% of Leap for Life
participants met their cholesterol-related goals, and 59%
met their blood pressure-related goals. These goals were
individualized and cannot be compared with data obtained
on COMP patients, but it seems appropriate to speculate
that educational programming such as Leap for Life may
indeed have a positive effect on patient risk factor
outcomes. These recent findings are encouraging from an
educational standpoint and may be reason for further
study.
One limitation of the
study concerns the voluntary nature of participation.
Baylor University Medical Center now uses automatic Leap
for Life referral order sets for patients admitted to the
hospital with a myocardial infarction or for cardiac
catheterization. Even in 1997, approximately 4000
patients were told about the program, yet only 167 chose
to participate. Since the individuals volunteered to
participate in the program, they may have been
predisposed to make lifestyle modifications. Further,
since they chose this program instead of seeking other
options, it is not surprising that they indicated that
the program met their needs and was their preferred
method for instruction.
Another study limitation
is that information on whether goals were achieved comes
from participants' verbal report. The staff members hope
to improve evaluation of the program through expansion of
a pilot program, which began in December 2000, targeted
toward primary and secondary cardiovascular disease
prevention populations. The pilot program includes
implementation of a new participant survey instrument to
be completed at both 6- and 12-month follow-up dates. The
improved survey instrument incorporates the stage of
readiness model defined by Prochaska and DiClemente (9),
several previously validated diet and exercise
self-efficacy measures, and the SF-12 quality-of-life
questionnaire (10).
Additionally, the pilot
program includes individualized health enhancement
messages for each participant at 6- and 12-month
intervals; this initiative corresponds with the current
literature regarding tailored health messages evoking
positive behavior change (11, 12). A tailored approach
allows individuals to receive information that is
relevant to their stage of readiness regarding exercise
and proper nutrition. Campbell and colleagues found a
positive effect of tailored nutrition messages in
promoting dietary change efforts for disease
prevention (11). Bennett and colleagues determined
that the individualized approach increases the
likelihood of compliance with the behavior
(12). With these additions to the Leap for Life program,
individual participant needs are addressed in relation to
each person's risk factor modification plan.
In conclusion, patients
enrolled in Leap for Life are encouraged to accept
responsibility for improved health during their recovery
phase. Participants are more likely to seek out
additional services offered by a health care system
during this impressionable and sensitive period following
hospitalization. Leap for Life is an example of the
importance of continued patient care education following
hospital discharge.
Acknowledgments
This article is dedicated
to the memory of Walter I. Berman, MD. The authors would
also like to thank Cynthia Orticio for her help in
formulating this manuscript.
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